Muscular Dystrophy Support Group Headquarters

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Muscular Dystrophy Association

https://www.mda.org/

Sep 04, 2021 · Our trained specialists are here to provide one-on-one support for every part of your journey. Send a message below or call us at 1-833-ASK-MDA1 (1-833-275-6321). If you live outside the U.S., we may be able to connect you to muscular dystrophy groups in your area, but MDA programs are only available in the U.S.

Contact Us Muscular Dystrophy Association

https://www.mda.org/about-mda/contact-us

[email protected]

Support Groups for Muscular Dystrophy: Finding Genuine ...

https://www.findatopdoc.com/Healthy-Living/support-groups-for-muscular-dystrophy

Different Support Groups for Muscle Dystrophy Muscular Dystrophy Association. The Muscular Dystrophy Association is the foremost organization that provides assistance to those who have muscular dystrophy, ALS, and other related diseases. They have multiple facilities located in the United States and Puerto Rico.Estimated Reading Time: 8 mins

Muscular Dystrophy Family Foundation Donate Today

https://www.mdff.org/

The Muscular Dystrophy Family Foundation uses its collective resources to help those with a neuromuscular disease live safer, more independent lives. Some examples of past types of support we’ve provided include: Adaptive Equipment. (e.g., ramps, lifts, wheelchairs, and wheelchair components) Home Modifications.

Get Support - Parent Project Muscular Dystrophy

https://www.parentprojectmd.org/care/for-families/for-newly-diagnosed/get-support/

The Parent Project Muscular Dystrophy Facebook page is great place to get daily Duchenne update on research and care and community. Facebook also has a large number of active groups in the Duchenne community. A simple search under “Duchenne” and you will find a large list of them.Estimated Reading Time: 4 mins

Muscular Dystrophies Support Groups Online …

https://www.dailystrength.org/group/muscular-dystrophies

May 11, 2021 · Muscular Dystrophies Support Group. The muscular dystrophies are a group of genetic and hereditary muscle diseases; characterized by progressive skeletal muscle weakness, defects in muscle proteins, and the death of muscle cells and tissue. In some forms of muscular dystrophy, cardiac and smooth muscles are affected.

Organizations: Are there good support groups for Duchenne ...

https://www.thinkgenetic.com/diseases/duchenne-and-becker-muscular-dystrophy/organizations/7809

There are many support groups or organizations for Duchenne muscular dystrophy that provide support, information, advice, referrals to physicians and medical centers, and up-to-date information on research and treatments. Many of these groups also fund research. Support groups for …

Muscular Dystrophy - Inspire

https://www.inspire.com/groups/muscular-dystrophy/

Teens and adults with muscular dystrophy. Living with muscular dystrophy. Family and friends. Symptoms. Treatment. In the News. Connect with others affected by muscular dystrophy to find support and information. Discuss heredity, gait, wasting, treatment, caregiving, and more. Add photos.

Directory of Duchenne Muscular Dystrophy Resources ...

https://www.duchenne.com/resources

Advocacy Groups and Nonprofit Organizations CureDuchenne A national nonprofit organization that raises awareness and funds to find a cure for Duchenne muscular dystrophy. The funds raised support the most promising research programs aimed at treating and curing the disease. CureDuchenne Cares provides outreach and education to parents and ...

Resources for Duchenne Muscular Dystrophy (DMD) …

https://www.everydayhealth.com/genetic-diseases/support-and-resources-for-duchenne-muscular-dystrophy/

Jul 09, 2020 · The group holds an annual conference on clinical and scientific research, and organizes annual summer camps for children with muscular dystrophy …

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